Yesterday we went to the oncologist and finally got the results on my mom's breast cancer tissue and what type of cancer it was. I think it was something like invasive carcinoma. She wrote it down on our paper because it was a tricky word. But she said if there was cancer that if you had to have a cancer this one was the one to have. Doctors and their doctors sense of humor.
Basically it's three hormones to feed the cancer cell. So estrogen, progesterone, and HER 2 negative. That's what this type of cancer feeds off. And my mom had the combination of the three. Well don't quote me on this, she has estrogen and progesterone, but she was negative on HER 2 which is a protein or something that controls how healthy breast cells grow, so obviously with out it it's perfect for cancer to grow.
Now that we knew what happened we could find a solution. The doctor said she didn't need to have chemo, which was great news. We didn't want to go through all that pain since it was already hard enough. So she said instead she would just have to take a pill… for ten years.
At first I laughed because I thought she had miss placed her words or she was joking like doctors do, but no, she was serious. It's called Tamoxifen. It's an anti-estrogen hormone. So she said that that will stop them from coming together and forming any other cancer cells on the other breast.
I was looking into the drug and it seems pretty good. The doctor said there's almost a 100% survival rate after five years which is really really great news. The thing is it's a good $100 to get per month. We haven't gone to get it at the pharmacy yet, we will today, I'm hoping that our insurance covers it.
Update, it did. At least for about five months. It has some side effects though. Not that all bad but we just have to keep an eye on her. I'm glad we're getting though this. It has been the toughest year yet for us but some how we managed to get through it. Really makes me smile and feel good to see how strong my family is.
Sometimes I feel like I'm cursed. Or have bad juju. Or have the worst luck in the world. Or if I get even more creative, which I have, maybe the guy who is in charge of writing my life in the book of life is just screwing with me and likes watching me suffer. Who knows? It's just a series of unfortunate events and they seem to get worse.
Today we went to the oncologist to see what treatment my mother would need. We thought we were finally going to move forward with this. Once we arrived we waiting more than usual and then once in the room we knew why.
They lost the fucking results. Ok let me explain. We have to see three doctors. The surgen, the oncologist, and the lab people. Apparently, when faxing over all the info or how ever they communicate with each other they lost the results. Well, technically not lost. They said that they are some where but they just don't know where. Hello! Definition of lost here.
The oncologist said they are trying to solve this as soon as possible. I saw the look of frustrating on my moms face and tried to calm her. She's already going through enough for this to happen and I hate seeing her down. It's like life is against us. What are we supposed to do? Roll over and die? Seems like that's what life wants.
No. We will survive. We will get though this. My mom is going to call the surgen and see what she can do. If that paper can not be found then the tissue will have to be tested again to see what type of came it is, hormonal, estrogen related, or something else the Dr. said I didn't really catch. And that testing can last for another couple of weeks.
Of course this happens to us. It's so annoying and I can't be surprised it has. After all that we have gone though what's not to be expected? But my fingers are crossed and if I have to start buying candles, a wand, a cauldron, and chant my way to a better life so help me God I will.
Yesterday I took my mom to the doctor. It was time for her staples to come out. It was a little of a wait but when we finally got in they took the staples out. My mom said it didn’t hurt like she thought it was going to. When they were off she said she felt better. But then she looked down. I feel like my heart had just shattered into a million pieces then was set on fire. Looking at her face, seeing how hurt she was. Looking down and seeing what she saw. The scar that was now forming.
I put my hand on her shoulder and told her she was strong. Not because she’s my mom, but she is one of the strongest women I know. She felt a little better. I try my best to comfort her as best as I can. I know I can’t make that hurt that she feels go away but I can help her though it. She seems at peace with what happened but that doesn’t mean it doesn’t emotionally hurt still. It changes everything.
Like yesterday before we went she wanted to wear a scarf. I asked her why? She told me that she just felt like it. But I knew she just didn’t feel comfortable going out like that. That gave me such a pain in my chest. Knowing she feels that way. That people will look. Jerks. They don’t even know what we have gone through, but it’s the sad truth, they judge. So I let her wear it, and I told her she looked beautiful.
We are still trying to move this mountain. It’s hard but here we are. One day at a time. It gives me much joy seeing how she’s returning to herself. Getting up and waking around. Even yelling at my brother and me to make our beds and clean up. I missed her. I missed that part of her. The part that made her my mom. No matter what happened, she’s still my mom. She will always be, and I will always love her, And it makes me happy that with each day that passes by she gets better. Physically and emotional.
Today we had our first check up since my moms surgery. According to the doctor everything is turning out “beautifully”. Makes me happy to hear that. Although while we were there and they were taking the gauze off I had to help undress my mom.
Now, never did I think I would be doing such thing. But, her health is my priority. Once the gauze was off I got to see the wound. It wasn’t a pretty site. It was actually a little unsettling. If I was shaken up about it, I can only imagen how she felt. Like, a part of her, a part that made her her, is now gone.
Once the doctor was examining her, I sat there thinking, how would I feel if a part of me was no more?How would you feel? It’s something that you have to kind of train your brain to think about, and also later accept. Then I thought of all the women who get mastectomies and they have to remove both breasts. That must be wicked hard. And I have mad respect for them. If your one of them, you are strong and I am proud of you.
If your a guy reading this and you don’t understand because your a cold hearted and closed minded asshole, just picture someone taking one of your balls off, maybe even both. How would you feel? They are part of you. Part of what make you male. So for a women to get a breast or breasts removed is hard. Extremely hard. Because sure they can take your balls off no one would notice. But breasts are pretty visible.
Anyway, the doctor said there might not even be any need for chemo, but that would be up to the oncologist. We have to make an appointment to see him soon.
I could tell that my mom was shaken up about seeing her wound. She said she didn’t want to see it but she did anyway. I hugged her and encouraged her the most that I could. Got her to see the bright side of all this. This is all for the better and her health is the most important thing. She cheered up a bit once I started making my little jokes, I like to see her smile.
Now, hopefully we are on the path of recovery. I have to find some exercises for her arm so it won’t stiffen up. Also maybe a bra that will get her self estime up a little. I know this isn’t easy for her and I want to make it as easy and as painless as I can. Even though it’s a lot of physical recovery I feel that there will also be a lot of emotional recovery, and I will be there every step of the way to make it better.
So, it has been a week since my mother’s surgery and I can say she’s doing really well. It’s nice to see her smiling and laughing . A lot of her church friends have come to lend they’re support and to also bring food and what not. I’m great full for that. The elders from the congregation have not yet came to see her which I think that’s pretty fucked up. If you are supposed to take care of your “flock” and one of your “sheep” is hurting and needs words of encouragement they are the ones that should be here first . But then again this congregation is full of hypocrisy. But which one isn’t right? That’s the definition of religion.
Tomorrow I return to work but only for a couple of hours since I have to take my brother to the doctor and then later also my mom for her check up . I was planning on going back on Thursday and Friday but I feel That I should also take those to days off and just start a fresh new week next week. I know I’m the sole provider but I really want to be here for my mom.
I had a mini fight with (my only church/real life friend) which left me feeling guilty . We have a visit at church from someone important and he wanted me to go. I told him I wanted to stay home with my mom. But he took it soon himself to call some people so they would take care of my mom and I would go. That made me upset because it’s not his decision weather I go to church of not. Yes, he’s probably worried about my spiritually but still. He apologized and we said good night. And that was the end of it.
After that I felt like I just didn’t have anyone who really understood me. So what do you do when you have only one friend and your mad at that friend so you literally can’t talk to anyone about your problems? You go online and you talk to strangers. Look, it was late and I was irritated, at the moment it sounded like the best idea. And I actually found some guy who lives in Mississippi. Not that that’s close by but still. We talked for two hours then I fell asleep. I haven’t talked to him yet today but maybe later on. Again, I’m usually not the one who reaches out first.
I’m feeling overwhelmed just a little bit I can’t let that get to me right now. I just have to find a way to distract myself from everything that’s going on or else my marbles will be lost.